Information and Resources

John Fuller Beckwith3/14/2024

At TLC we believe all persons with lymphedema should have access to as much information as possible and to be able to form their own views about living with this disease. We do not discourage you from seeking out information. However, the internet can hold some questionable or biased information about the disease and its treatment. Below are a number of reputable sites that are felt to provide safe and comprehensive information and views. Also listed below are hard copy sources such as books and pamphlets. If you have questions or come across information that appears to be contradictory to what your therapist has said, we encourage you to dialogue with us. Clarification is useful and addressing misleading information is important to help you best manage living with this disease.

Internet Resources for the General Public

• The National Lymphedema Network: www.lymphnet.org
• StepUp-SpeakOut: www.stepup-speakout.org.
• The Lymphatic Education & Research Network (LE&RN): www.lymphaticnetwork.org
• Lymph Notes: www.lymphnotes.com
• Lymph Activist: www.lymphactivist.org
• Circle of Hope: www.lymphedemacircleofhope.org
• Lymphedema People: www.lymphedemapeople.com
• Lymphoedema Support Network: www.lymphoedema.org
• National Cancer Institute: www.cancer.gov; type, ‘lymphedema,’ into search box

Internet Sites for Expert Training Schools/Therapist Information

• Norton School of Lymphatic Therapy: www.nortonschool.com
• Klose Training and Consulting: www.klosetraining.com
• Academy of Lymphatic Studies: www.acols.com
• North American Vodder School: www.navalt.org

Pamphlets and Publications

• Lymphedema: An Information Booklet by Saskia R.J.Thiadens, RN
• 100 Questions and Answers about Lymphedema by Saskia R.J. Thiadens, RN
• Lymphedema: Understanding and Managing LE After Breast Cancer Treatment The American Cancer Society
• Morning Has Broken by Jan Hasak
• Overcoming the Emotional Challenges of Lymphedema by Elizabeth McMahon, PhD
• Voices of Lymphedema by Elizabeth McMahon, PhD
• Lymphedema Caregivers Guide by Mary Kathleen, Kearse, PT
• Thriving After Breast Cancer by Sherry Lebed Davis